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Pierre Robin Sequence

Some craniofacial conditions, like Pierre Robin Sequence, may be detected during pregnancy. Others aren’t discovered until after a baby is born. At Banner Children’s, our pediatric specialists are here to support you every step of the way—from prenatal care to childhood and beyond.

What is Pierre Robin Sequence?

Pierre Robin Sequence is a rare birth condition that affects the jaw and can impact a baby’s breathing, feeding and hearing. It’s called a “sequence” because a small, underdeveloped lower jaw causes the tongue to fall backward, which blocks the airway. Some babies also develop a cleft palate when the roof of the mouth doesn’t close properly during development.

This condition is named after the French surgeon who first described it.

What causes Pierre Robin Sequence?

Pierre Robin Sequence may be linked to genetic condition (such as Stickler syndrome), or environmental factors.  In most cases, the cause is unknown.

Signs and symptoms of Pierre Robin Sequence 

Pierre Robin Sequence is often diagnosed soon after birth during a physical exam. Common signs and symptoms of Pierre Robin Sequence include:

  • Small jaw
  • Trouble breathing
  • Difficulty feeding

Cleft palate is also common with Pierre Robin Sequence and may contribute to feeding and hearing issues.

How is Pierre Robin Sequence diagnosed? 

Diagnosis typically begins with a physical exam by your baby’s doctor. If Pierre Robin Sequence is suspected, additional tests may be ordered. These may include:

  • A consultation with a pediatric ENT specialist and a pediatric plastic surgeon
  • Imaging tests such as a CT scan
  • A sleep study to evaluate breathing concerns

At Banner Children’s, your child’s care team may include a multidisciplinary group of pediatric experts working together to confirm the diagnosis and build a treatment plan.

Treatment options for Pierre Robin Sequence

Treatment focuses on helping your baby breathe, eat, and grow. Common treatments may include:

  • Breathing support: Some babies may need procedures to improve their airway, such as jaw-lengthening surgery or a tracheotomy.
  • Feeding support: If feeding is difficult, a temporary or a permanent feeding tube may be used to help your baby gain weight. Often, improved breathing also improves feeding.

Your child’s pediatric specialists will adjust the care plan as your child grows, making sure their needs are met at every stage.

Expert Pierre Robin Sequence care at Banner Children’s 

At Banner Children’s, we treat more than just symptoms - we care for the whole child. Our compassionate team is here to guide you and your family through diagnosis, treatment and beyond. With access to pediatric ENT, plastic and craniofacial surgery and other kid-connected specialties, your child receives care designed just for them.